南華大學機構典藏系統:Item 987654321/17807
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    Title: 未婚女性主要照顧者照顧經驗之探析-以接受安寧療護家庭為例
    Other Titles: Investigation of the Experiences of Care from the Caregiver of Unmarried Female--the Palliative Care Accepted Families as the Example
    Authors: 盧秀杏
    Lu, Hsiu-hsing
    Contributors: 生死學系
    游金潾
    Jin-lin You
    Keywords: 安寧療護;未婚女性;主要照顧者;處境位移
    Palliative Care;Unmarried Female;Shifting Place;Main Care Giver
    Date: 2012
    Issue Date: 2015-01-06 15:01:55 (UTC+8)
    Abstract:   本研究目的為探討接受安寧療護照顧家庭之未婚女性主要照顧者的照顧經驗,研究者採立意取樣,並透過深度訪談、田野觀察法及部落格資料,對四位未婚女性主要照顧者進行資料收集,以現象學研究法了解未婚女性主要照顧者,在每個照顧階段中的置身處境,分別為陪病前的處境、突如其來的噩耗、成為主要照顧者的抉擇、陪伴處境、陪伴歷程、照顧者的支持來源及照顧者自我轉化的處境。   本研究發現,未婚女性成為主要照顧者原因,為受社會性別差異的眼光所框限、社會賦予職業角色的期待、仿效重要關係人及珍惜生命共處的時間;而在照顧過程的處境,則有被迫放棄與失落、沒有決策權的角色、由自由轉入受限、無望、絕望的照顧經驗;在支持系統上,主要是相識多年朋友,而家人次之,而家人的支持則是由支持鼓勵的角色,轉變成趾高氣昂的監督者;在處境位移上則為自願、抱怨、祈願、甘願及轉願或深怨的歷程。
      This study intends to investigate on the single female main care giver in families that accepted the palliative care for their patients. The study includes selective sampling, personal interviews, field study, and information posted on the web to conduct the research on 4 single females. The analysis showed different stages in the process of dealing with a loved one’s terminal illness that includes, pre-hospitalization, the suddenness of the progress of terminal illness, the choice to become the main care giver, accompaniment, becoming the source of support, and the self transformation of the care giver.   The study points out several main reasons that unmarried females take on the role as the main care giver; society’s unspoken norm for females to be care giver, the expectation that comes with the job, cherishing the last moments with a loved one, and so on. During the process, some gave up in despair and become restricted in their daily lives leading to a sense of hopelessness in the care giver. The support systems for the subjects are usually life-long friends, followed by family members. The role of family members usually shift from the initially supportive role into demanding inspector and the subjects tend to cope with this by wishing, hoping, and praying for intangible self comfort.
    Appears in Collections:[Department of Life-and-Death Studies] Disserations and Theses(M. A. Program in Life-and-Death Studies)

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