| 摘要: | 本研究的目的乃在探討一位母親養育唇顎裂兒的調適歷程，以及探討影響其教養唇顎裂兒的因素。訪談資料的處理為謄寫逐字稿、進行編碼、列入範疇及形成概念之資料分析。從研究資料獲致以下之結論：1.個案養育唇顎裂兒的調適歷程方面：從個案初得知胎兒有唇裂狀況的焦慮、看到孩子實際缺陷情況的驚嚇、面對孩子餵食困難的沮喪、不捨孩子承受缺陷之苦的罪惡感、以及與孩子一起面對現實的接納，可知個案的調適歷程分別有焦慮、驚嚇、沮喪、罪惡感、及接納等五個階段。2.影響個案教養其唇顎裂兒的因素方面：個案之社會支持功能、孩子顏面缺陷的程度皆具有正面的影響作用。
The purpose of this study was to investigate the adaptation process of a mother, and to explore the factors of impact on raising the baby with cleft lip and palate. The participants of the study included the child's mother mainly, and his father, aunt, as well as his teacher were also involved for the purpose of cross-reference. In this study, the in-depth interview of qualitative research was employed and the semi-structured interview guide was used as a tool for interviews. The recorded interview data were firstly transformed into verbatim, and then the analysis procedure of coding, categorizing, and concept formation was followed. Based on the study data, some conclusions were derived as follows: 1. The adaptation process of the case: Based on the various reactions expressed by the mother such as anxiety after getting information about the fetal with cleft lip, fright after seeing the situation of child with the actual defects, depression for the feeding difficulty of the child, guilt at the child with defects, and acceptance of facing reality, it seems to have five phases of anxiety, fright, depression, guilt, and acceptance in the adaptation process of the case. 2. The factors of impact on raising the baby with cleft lip and palate: Some factors such as social support functions, and the child's degree of facial defects both had positive influences. However, the factor of her husband's health seemed to have negative impact. |
