| 摘要: | 本研究以探討慢性肝病合併腹水病患的身體知覺與調適經驗為主題。研究者透過詮釋現象學方法為導向，藉由從參與觀察的田野紀錄以及五位研究參與者的深度訪談，取得文本資料分析後，分別針對肝性腹水病患之身體內在知覺感受、腹水存在受限處境的知覺、疾病帶來的存在壓力覺察與調適等進行詮釋與描寫，以此呈現慢性肝病合併腹水病患的身體知覺感受與調適經驗的真實處境。 本研究發現，慢性肝病合併腹水病患的身體知覺感受與調適經驗意涵，可以從病身的知覺感受與調適經驗兩大主題中進行窺探。前者是以病患體驗疾病的觀點出發，將身體主體的知覺感受與經驗進行描述分析。內容從研究參與者與疾病初相逢、確診後與疾病共存、腹水顯現後的生活受限、到後續尖銳的存在壓力。其中存在壓力包括：社會文化的標籤化感受、死亡臨現、發病後生活重心漸失、孤獨承受與關係的煎熬。後者是在與疾病相逢共存之後，感受受限處境與覺察存在壓力，涉及衍生自我在面對身體失序與當下生活態度的調整，以及家庭關係的維繫。 研究結果可促進臨床醫護人員以慢性肝病合併腹水病患為中心的觀點與角度，深化對其身體知覺感受與調適經驗內涵的瞭解，在臨床護理過程能有實質的幫助之外，並重新建立和病患疾病與共的照護模式。
The aim of this research was to explore the bodily perception and djusting experience of patients with chronic hepatic ascites.It adopted hermeneuticphenomenology as the research method.The empirical data were collected through field participation and observation in the hospital ward as depth-interviews with five patients of the chronic hepatic ascites,it then proceeded analysis of the text.The text was delineated and interpreted on four level,i.e,the inside the bodily perception,existential situation,pressure and respones, advantage present real situation with the bodily perception and djusting experience of patients with chronic hepatic ascites. This research found that the bodily perception and djusting experience of patients with chronic hepatic ascites involved two world, i.e, Meeting and together with disease.The former was,to description and analysis of the studies participant from invasion to reality of the disease,massive ascites to existential difficult situation of limited,pressure increased, the bodily perception experience of with meeting disease. The latter was together with disease'world,contain existential difficult situation and pressure related to anxious of death and discrimination sense of social culture,how to change and trasformation may be copying and adjusting under self face to immediately manner. The result could facilitate medical professionals'understanding on theBodily Perception ,the existential situation,pressure and the response of Patients with chronic hepatic ascites, in the clinical nursing process can have beside the substantive help, and establishes and the living with patient- disease of nursing pattern. |
